What is celiac disease?
Celiac disease is an autoimmune disorder that results from the response of the immune system to the ingestion of gluten, which is a protein found in wheat, barley and rye. This immune response causes inflammation and damage to the small intestine that can ultimately lead to malnutrition and poor health. The genes which must be present in order for celiac disease to develop are inherited; therefore it is found to occur at a significantly higher rate among first-degree relatives (parents, children, and siblings) of those who have the condition. The only treatment for celiac disease is lifelong adherence to a gluten-free diet. The removal of gluten from the diet is a highly effective treatment that allows the small intestine to heal, leading to normal absorption of nutrients.
Childhood is a crucial time for the overall growth and development of all systems of the body. If undiagnosed or untreated, celiac disease can cause malnutrition in children that may lead to the inability to develop optimal bone mass, short stature, failure to thrive, anemia and delayed puberty, among other problems.
Nutrients of concern:
Nutritional imbalances may exist among children with celiac disease and can occur for a number of reasons. Primary causes are the inability to absorb certain nutrients due to damage of the small intestine (until the intestine has had a chance to heal) and the lack of enriched grain products often consumed on a gluten-free diet. The following nutrient deficiencies may be associated with celiac disease: thiamin, riboflavin, niacin, folate, calcium, magnesium, iron, vitamin B12, vitamin A, vitamin D, vitamin E, and vitamin K. Talk to your doctor or registered dietitian if you are concerned about potential nutritional deficiencies in your child. A dietitian can provide suggestions on gluten-free foods which contain nutrients of concern. If supplements are recommended, be sure to confirm that they are gluten-free.
Questions to ask your doctor:
If one of my children has been diagnosed with celiac disease should I have my other children tested?
Are there symptoms I should watch out for in other family members which could be indications of celiac disease?
Does my child have any nutritional deficiencies? Should he/she be taking any supplements?
If so, for how long?
Take realistic steps for your family:
- Educate yourself, your child, and the entire family about what it means to have celiac disease and the importance of a gluten-free diet as the treatment.
- Be sure everyone in the household is knowledgeable about sources of gluten: wheat, barley, rye, contaminated oats, and the by-products and hybrids of these grains. Remember that gluten may be found in unexpected foods such as licorice, energy bars and processed lunch meats.
- If some members of your household are continuing to eat gluten-containing foods, remember that cross-contamination is a common way that gluten finds its way into food. Even the smallest amount of gluten can cause damage to the small intestine without causing visible symptoms, so it is imperative to prevent cross-contamination.
- Designate a separate area for gluten-free ingredients on an upper-shelf in the pantry and refrigerator.
- If possible, assign one counter area to be used only for gluten-free food preparation.
- Thoroughly clean cookware, cutting boards, plates, bowls, and utensils.
- Buy separate condiments or put them in squeeze bottles so utensils do not cross-contaminate them.
- Reach out to national organizations that offer local support groups for families such as the Gluten Intolerance Group (GIG) at www.gluten.org.
Can my child still enjoy a socially active life (play sports)?
Aside from the need to maintain a gluten-free diet, children with celiac disease are able to participate in traditional events as usual such as sports, band, academic clubs, and other hobbies. Always communicate with coaches, club sponsors, teachers and other parents about your child’s need to avoid gluten. Consider exploring whether other children are gluten-free so both the kids and parents can have an informal support system.
What should I do about school lunches?
Communicate! Whether you choose to pack your child’s meals or buy them at school, alert the principal, school nurse, and teachers about the importance of a gluten-free diet for your child. This will also come in handy if there is a special occasion, such as a birthday party where you will need to be alerted ahead of time if you need to provide an alternative dessert for your child.
If you would like to purchase meals from school, contact the cafeteria manager and/or the School District (Nutrition Services Department) to inquire further about the availability of a gluten-free menu. Some school cafeterias are equipped for allergen-free/gluten-free cooking and can provide daily options, whereas others have limited resources and will not be able to accommodate your child.
To have the most assurance that your child enjoys gluten-free meals while at school, preparing lunches at home is a good option. This can be an excellent hands-on opportunity to educate your child about eating gluten-free. Once they are familiar with the guidelines, let them try to plan their own menu. This will empower them, give them some freedom, and help them not to feel so restricted by their diet.
Kid-friendly gluten-free (GF) meal and snack ideas:
- Yogurt with fruit and nuts
- Cold or hot cereal (made from puffed rice, quinoa, millet, amaranth, teff, or other GF grains) with banana, cooked apples, cinnamon, maple syrup, etc.
- Eggs, potatoes and GF toast
- Smoothies: yogurt, cow/almond/soy/rice milk, nut butter, berries, banana, mango, or any fruit your child likes!
- GF pancakes, waffles, or French toast
- Sandwiches made with GF bread or wrapped in lettuce (green leaf, red leaf, butter lettuce work best)
- GF pasta and favorite sauce or chilled GF pasta salad
- GF burrito with sweet potato, black beans, and brown rice
- Tacos, nachos, or quesadillas made with corn tortillas and favorite fixings
- Baked fish/chicken with GF macaroni and cheese
- Hard-boiled egg, cheese stick, yogurt, cottage cheese
- Applesauce, pudding, fresh fruit, GF muffin
- Homemade trail mix with dried fruit, nuts and seeds
- Veggies: carrot, celery, jicama, red pepper, broccoli, and cauliflower
- Dipping ideas: nut butter (peanut, almond, cashew), hummus, ranch-flavored yogurt, cream cheese, salsa, guacamole, and bean dip